Publications

STIMULATE-ICP Publications

Keep an eye on this page to find out what we have discovered so far on the STIMULATE-ICP Study. You will find links to our latest publications.

Barriers to healthcare access and experiences of stigma: findings from a co-produced Long Covid case-finding study

18 April 2024

STIMULATE-ICP's latest publication is in publication in Health Expectations: Barriers to healthcare access: and experiences of stigma: findings from a co-produced Long Covid case-finding study. Long Covid can be a stigmatising condition, particularly in people who are disadvantaged within society. This may prevent them seeking help and could lead to widening health inequalities. This co-produced study with a Community Advisory Board of people with Long Covid aimed to understand healthcare and wider barriers and stigma experienced by people with probable Long Covid.

Link to paper: https://doi.org/10.1111/hex.14037

Accessing care for Long Covid from the perspectives of patients and healthcare practitioners: A qualitative study

14 March 2024

Long Covid is an emerging long-term condition, with those affected raising concerns about lack of healthcare support. Prof. Christina van der Feltz-Cornelis and team conducted a qualitative study to identify facilitators and barriers to healthcare access for people with Long Covid, aiming to enhance our understanding of the specific nature of these barriers and how patient experiences may vary. The results have been published in Health Expectations.

Link to paper: https://onlinelibrary.wiley.com/doi/10.1111/hex.14008 (Health Expectations)

Prevalence of mental health conditions and brain fog in people with long COVID: A systematic review and meta-analysis

13 March 2024

The STIMULATE team, led by Prof. Christina van der Feltz-Cornelis, has examined the Prevalence of mental health conditions and brain fog in people with long COVID.

Link to paper: https://www.sciencedirect.com/science/article/pii/S0163834324000392 (General Hospital Psychiatry)

Prevalence, Risk Factors, and Characterization of Individuals with Long COVID Using Electronic Health Records in Over 1.5 Million COVID Cases in England

10 January 2024

STIMULATE-ICP's latest publication is available in ISPOR journal, Value in Health: "Prevalence, Risk Factors, and Characterization of Individuals with Long COVID Using Electronic Health Records in Over 1.5 Million COVID Cases in England" . Long-COVID has a significant and long-lasting impact on individuals' health and well-being. This study uses electronic health records in England to describe the prevalence of long-COVID symptoms among individuals seeking medical attention and explores the risk factors for having long-COVID.

Link to paper: https://www.sciencedirect.com/science/article/pii/S1098301523041839?via%3Dihub (Value in Health)

Delphi Study Results in Pre-Print

20 December 2023

In Pre-print: Integrated Care Priorities for Complex, Multi-System, Long-Term Conditions and for Long COVID: Results of the STIMULATE-ICP-Delphi Study Among UK Patients and Healthcare Providers

Link to paper: https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4498395

Patients at the centre: integrating primary and community care

15 December 2023

The House of Lords Integration of Primary and Community Care Committee has published its report 'Patients at the centre: integrating primary and community care', which was contributed to by STIMULATE-ICP's Delphi team, led by Professor Christina van der Feltz- Cornelis at the University of York. The report highlights the need for a "seamlessly integrated patient-centric healthcare sector where patients are given the type of care they need, when, where, and how they need it."

You can read the full report here: https://publications.parliament.uk/pa/ld5804/ldselect/ldcareint/18/18.pdf (PDF)

A summary of the report and alternative formats can be found here: https://committees.parliament.uk/committee/649/integration-of-primary-and-community-care-committee/news/198938/integration-is-key-to-health-service-improvement-says-lords-committee/

Pathways to care for Long COVID and for long term conditions from patients' and clinicians' perspective

4 December 2023

New STIMULATE-ICP publication in the Journal of Evidence-Based Medicine, "Pathways to care for Long COVID and for long term conditions from patients' and clinicians' perspective".

Link to publication: https://onlinelibrary.wiley.com/doi/10.1111/jebm.12563

Pre-Print: Healthcare Utilisation of 282,080 Individuals with Long COVID

19 October 2023

New STIMULATE-ICP paper in pre-print: Healthcare Utilisation of 282,080 Individuals with Long COVID Over Two Years: A Multiple Matched Control Cohort Analysis.

Link to paper: https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4598962

In Pre-Print: Prevalence, Risk Factors and Characterisation of Individuals with Long COVID

27 September 2023

STIMULATE-ICP new publication in pre-print: Prevalence, Risk Factors and Characterisation of Individuals with Long COVID Using Electronic Health Records in Over 1.5 Million COVID Cases in England

Link to publication: https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4515876

Integrated Care Pathways: A New Approach for Integrated Care Systems

1 September 2023

STIMULATE-ICP's new analysis piece has been published in the British Journal of General Practice: Integrated Care Pathways: a New Approach for Integrated Care Systems.

Link to article: https://bjgp.org/content/73/734/422

Long Covid Active Case Finding Study Protocol in Publication

20 July 2023

STIMULATE-ICP's new study protocol has been published in PLOS ONE: STIMULATE-ICP: Long Covid active case finding study protocol: A co-produced community-based pilot within the STIMULATE-ICP study (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways)

Link to article: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0284297

Thousands of people in the UK are out of work due to long COVID

22 May 2023

STIMULATE-ICP's Professor Nisreen Alwan reflects on the impact of Long Covid on employment in this opinion piece for The Conversation: https://theconversation.com/thousands-of-people-in-the-uk-are-out-of-work-due-to-long-covid-200297

Learning from long COVID: integrated care for multiple long-term conditions

27 April 2023

STIMULATE-ICP's Professor Christina van der Feltz-Cornelis, Dr Melissa Heightman and Dr Gail Allsopp publish editorial on integrated care for multiple long-term conditions in the British Journal of General Practice.

Website: https://bjgp.org/content/73/730/196

PDF: https://bjgp.org/content/bjgp/73/730/196.full.pdf

Neurological Dysfunction in Long COVID Should Not Be Labelled as Functional Neurological Disorder

18 March 2023

STIMULATE-ICP's Professor Christina van der Feltz-Cornelis and Professor David Strain have published a new article in Viruses, "Neurological Dysfunction in Long COVID Should Not Be Labelled as Functional Neurological Disorder":

Website: https://www.mdpi.com/1999-4915/15/3/783

PDF: https://www.mdpi.com/1999-4915/15/3/783/pdf

Stolen Lives: The Reality of Living with Long Covid

28 February 2023

STIMULATE-ICP's team of patient advisors have published an entirely patient-led, designed and written e-book detailing their experiences of living with Long Covid: Stolen Lives: The Reality of Living with Long Covid: https://www.openaccessgovernment.org/stolen-lives-reality-living-long-covid-coronavirus-anxiety-gp/153867/

The full e-book can be downloaded here.

STIMULATE-ICP Trial Structured Protocol Paper

15 February 2023

STIMULATE-ICP new publication in PLOS ONE: STIMULATE-ICP: A pragmatic, multi-centre, cluster randomised trial of an integrated care pathway with a nested, Phase III, open label, adaptive platform randomised drug trial in individuals with Long COVID: A structured protocol: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0272472

Multi-organ impairment and long COVID: a 1-year prospective, longitudinal cohort study

14 February 2023

COVERSCAN 1 year follow-up study published in JRSM: https://journals.sagepub.com/doi/10.1177/01410768231154703

STIMULATE-ICP Delphi Study Protocol published in PLOS ONE

30 November 2022

STIMULATE-ICP's Delphi Study Protocol has been published in PLOS ONE (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol